Post Surgery Update #1

Mila has been out of surgery since around 2:00 east coast time. She's had some issues. First of all they said she lost a lot of blood during surgery, over 800ml. They had to give a few blood transfusions but said she did good.  Shortly after when we got to finally see her she had a pretty long seizure.  We weren't sure at first because we thought she was just trying to come out of the anesthesia.  She went into status and I believe she was having a seizure for 30 mins to an hour. They had to give her large doses of her anti-seizure meds but when that didn't work they had to give her a rescue med. This calmed things down a bit but her breathing was worrisome and her heart rate shot up to 220 and kept going up.  They gave her some fluids through IV and were able to get her heart rate back down. This was extremely difficult to stand by and watch and once again not be able to help my daughter. After they calmed things down Mila finally seemed to be getting the rest she needs.

Mila has two drainage tubes coming out of her head.  She is losing a little more blood than they would like, so it's now midnight and they just had to give her more.  This is making me uneasy. She also isn't responding much and hasn't opened her eyes. The doctors from the neurology team keep checking on her and are trying to get her to open those beautiful eyes and to move her right side, but not much yet.  

Going to try to get some sleep.