Mila opened her eyes up for the first time yesterday. We were very happy to see them. She also had some physical therapists come by. I thought it was a little too soon and that Mila wouldn't do anything for them, especially since she is on a lot of medication and pretty out of it. Amazingly, she grabbed some toys and put them in our hands. It was a great thing to see. They also sat her up and tried to move her head a little bit but Mila didn't really like it or respond well to it.
A speech therapist came by to try to get her to sip through a straw and eat some pudding but couldn't really get her to. She's not really opening her mouth much or swallowing. So right now she's being fed through an NG tube.
They also felt comfortable and were able to remove one of the tubes coming out of her head. This one was under the skin draining blood from the surgery. This is good considering how much blood she lost. We knew she lost a lot but didn't realize it was about 3 times the amount of her body's volume. They had to do 3 to 4 transfusions during surgery. Scary stuff.
There is one more tube in her head they hope to remove tomorrow. This one is draining fluid from the brain. When that is out we should be able to move out of the PICU and onto the epilepsy floor.
Mila's still resting most of the day and on a lot of pain medication. She hasn't moved her eyes to the right or really moved her right arm or leg. That is expected with the surgery though. Something we hope to regain most of in the future with therapy.
We also wanted to say that we have had some great nurses taking care of us. The good ones truly make your days easier and we greatly appreciate them. So happy nurses week to all the hardworking nurses out there.
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