Mighty Mila: Back at Home!

Here is a long overdue update for everyone. We finally made it home after being gone for almost 7 weeks!!! We were discharged from the hospital on Thursday the 21st and we flew back home to California on Monday the 25th. We were all very excited to get home and sleep in our own bed.

There has been a lot of issues trying to get everything in order so it hasn't been all relaxing and stress free. We were supposed to have some home nursing and therapy set up before we even left the hospital and it was to be in place when we got home. But things aren't really working as planned. It's kind of like the twilight zone. Going back and forth between so many different people, companies, insurance, getting different stories and spending hours a day on the phone (thats Marcela's job, I have no patience or understanding of the health insurance business, thank God for her). We hope to get things sorted out this week.

Mila is doing pretty well. She is eating better and actually has quite an appetite. Her drinking is slowly improving, we just have to really regulate how much she takes in and tell her to take breaks to prevent choking. We're trying different straws, cups and techniques to help her out. Meal time is always an adventure with her. Usually takes a very long time and is pretty messy. A lot of it has to do with her cheek and teeth issues.

The hardest part is keeping her entertained. She watched so much tv in the hospital because thats all she could do. Really didn't watch too much before that. I've seen Wizard of Oz, Mary Poppins and Frozen literally hundreds of times over the past 2 months. Whatever works though, if it helps calm her and keeps her attention. Plus I've got some really good jams in my head throughout the day.

Mila still needs lots of rest and time to heal and recover. The surgeon said it could take a year or so. She seems really bored and agitated at times. I think she realizes that she can't do some of the things she used to. Mila was able to walk along furniture and tables (with us behind her) before surgery and use both hands to play. Now she can't put weight on her right leg and her right arm is mostly limp. Who knows what kind of feeling or sensations she has in them at times. Hopefully the physical therapy will start very soon and get her going again.

Much love and thanks again to the #MightyMila tribe out there. You've helped us get through this part of our journey and it continues on.