Sometimes This is How Our Nights Go

3am and up for the long haul. Marcela has just laid down. I made her. Been a rough night. Mila's having some activity we believe are seizures since around 9pm. She can't sleep. On a medicine cocktail. Rescue dose of Ativan for seizures at 1220am.  Still having activity over 2 hours later. Falls asleep for a minute then eyes open and blank stares. Drifting to the right. Just like her seizures before surgery. They want a level of her Phenobarbital medication. Three pokes and three veins later they finally get it. Having breathing issues. Sounds congested. Respiratory lady came in. Just add it to our tab. They say lungs are clear, probably mucous in back of throat. They suction her mouth & nose, almost until she gags. Its still there when they leave. Sounds like a mucous, phlegmy thing. Maybe its just saliva. I don't know. Falls asleep, small cough & wakes up.  She's exhausted, beat up & bloody. Laid out. Dried blood on head still from surgery.  Massive incision & stitches on head. Mad Max style. Make that questionable activity over 3 hours after seizure rescue med. This girl's a fighter but she's been in a lot of rounds. My legs are getting wobbly. I should probably sit down. Not long before I'm back up though comforting my girl. Poor kid just can't get rest. 445am episodes still haven't stopped. Heart rate goes up. Forgot to pay attention to that. Blood levels come back. Phenobarb low. Going to give some more. Breathing issues have subsided. One good thing. Extra dose of Phenobarb in at 515am. Coffee time for me. Episodes continue. 545am Mila finally sleeping, peacefully I think, hopefully. Marcela's awake now from the beeping and alarms.  605am another episode. Neuosurgery doctor comes in. We explain the situation. Needs to talk with epileptologists. I go to sleep for an hour? Now up from the morning routine. Morning meds given. Find out Mila had no pain meds for 11 hours. Should be given every 4. Definitely part of the problem. Someone dropped the ball.  Time to OCD over everything now. CT scan ordered. Mama bear is always in affect, now papa grizzly bear is out of hibernation.  Time for more coffee.